My Journey to Self-Acceptance: Embracing My Uniqueness By Naava Agnes, age 23 Growing up in a small village in Kampala, Uganda, I was born with a congenital melanocytic nevus (CMN) on my face. It was a constant reminder that I was different, and it seemed like the world was always staring back at me. People…
Last year, Maddie completed the Dale Carnegie course, Level TWO of our Young Ambassador Programme!
This year we want to provide all our members with brilliant NEW opportunities to challenge yourself and raise funds for Caring Matters Now. We have 800 events across the UK you can choose from!
Throughout Rare Disease Month, we invited our members and social media followers to DONATE and SHARE this image to raise the profile of CMN as a rare disease!
Living with CMN or parenting a child with CMN can feel quite overwhelming and stir up a whole range of emotions such as fear, anxiety, and worry. As a charity, we want to support our members to reach their full potential and help them to develop key social and emotional life skills.
In Autumn 2023 we were able to give one of our Young Ambassadors, Maddie, a unique opportunity to write a journal article to be published in the British Journal of Dermatology (BJD). Maddie wrote an article based on a patient’s perspective of living with CMN, entitled ‘Challenges in adult services for a young adult with a rare skin disease’.
Experiences of CMN Living with Congenital Melanocytic Naevi (CMN), as a rare disease, is different for everyone and therefore how we can best provide support depends on these variable experiences. CMN has many different types leading to differing experiences for those affected. For some, CMN is found solely on the skin as a dark brown…
A total of 10 online Community events were hosted between October 2023 and March 2024, this included 5 Combined Baby & Toddler and Stay & Play Infant Group events, 1 Stay & Play Infant Group event and 1 Baby & Toddler Group event!
A total of 10 online Community events were hosted between October 2023 and March 2024, including 3 Gaming events! This group was attended by a group of young people with CMN and siblings, between the ages of 9-13 years, getting together for an hour of gaming each month! The group are well accustomed to Fortnite,…
Level 2 of the programme offers the unique opportunity to complete the prestigious Dale Carnegie Course. Designed to equip you with the communication and human relation skills required to be successful in any setting, this world famous programme of self-development helps the leaders of tomorrow leverage their skills so they can strengthen relationships between colleagues,…
