UPDATE – Our 3 CMN Dads did it!!!!! So, on the 20th September 2015, three incredible dads of children with CMN, reached the summit after a gruelling 9 days of trekking and a final 8 hours of glacier climb with crampons & ropes. These guys are incredible! This was a gruelling challenge, mentally and physically…
As this was our 2nd Coffee and Cake event, we were slightly more organized! We gathered a small team of family and friends to help out on the day with tombola, raffle, puppet show and bouncy castle, as well as a fun disco and face painting donated by Starz Party. We used our local church,…
On June 6th 2015 with the help of family & friends, we decided to organise our 2nd Fundraising fun day. We had such a brilliant time last year we received such amazing support and raised a fantastic £1700. We also managed to raise awareness through local media by having the support of Nottingham Evening Post…
‘Oh what a lovely day, the day we went to Bridlington’ …and so it turned out to be! The families came, the food was eaten, the sand sparkled, the sea was freezing but best of all the sun came out. All week the Gollop family watched the weather forecast. A Beach Day in the rain…
We were very lucky with the weather, it was a real scorcher all morning. We met at a lovely cafe next to a park with a paddling pool right on the beach in Brighton. We were a total of 5 families, with families coming to join us throughout the morning. The children had huge milkshakes…
On 6th June 2015, 8 families from all over Ireland attended the second Dublin regional gathering, organised by Caring Matters Now. For some families it was a chance to catch up again and for others it was their first time attending such an event and they were keen to chat to other families affected by…
Year by year the knowledge and understanding of CMN increases due to the excellence research that is ongoing. As a child growing up with CMN I wasn’t interested in the research and the knowledge behind my condition, however as I get older it is important to me to understand all aspects of CMN and appreciate…
Our family were all away the weekend that Caring Matters Now had their official coffee morning, so we did ours a bit late! As a family we’ve been keen to raise more funds and more awareness, and as we enjoy opening our home up for friends and family we thought a coffee morning was the…
January 2013 was the month my husband Gareth and I found out we were going to be having another baby, overjoyed but nervous we kept this to ourselves for the first few months until the first scan, I remember driving to the hospital trying to prepare myself for this appointment (having had a few disappointing…
There were thirteen of us who met at Woodlands park on a Saturday morning in June. That’s 3 families. We all got on straight away and I couldn’t wait to go on the water slide, Viking ship and toboggan run with everyone. I could see that everybody was having a good time. We all want…
