In September, Caring Matters Now went out on the road again to continue to raise awareness of Congenital Melanocytic Naevi (CMN). This time, we travelled to Harrogate, in North Yorkshire, to exhibit as part of the British Dermatological Nursing Group (BDNG) Conference 2023. Despite having one of the smallest stands in comparison to the pharmaceutical…
Hello, my name is Joshua, I am 12 years old, and I was born with Congenital Melanocytic Naevi (CMN) covering 40% of my trunk and I have over 40 satellites throughout my entire body. I am so excited and honoured to be a Young Ambassador for Caring Matters Now. As you can only imagine my…
During this session at our BIG Weekend, we had the privilege of hosting an annual research update from Professor Veronica Kinsler, world leading specialist in CMN.
Hello, my name is Henry. I am 11 years old. I have only known about Caring Matters Now for just over a year, we’ve been to two regional meetings and the Big Weekend 23. My mum wanted to help me understand, that although my Nan has CMN too, that there are other kids that have CMN…
During the week of the 17th-21st July, Maddie, one of our Young Ambassadors joined us for work experience. Throughout her week with us, Maddie had the opportunity to get involved in many aspects of charity life and put new skills into practice including public speaking, journal writing and producing a ‘walk-through’ of the website. Opportunity to…
Meet Anna “By being true to myself, I created a welcoming space for others to be themselves too.” My name is Anna, I am 15 years old, and I was born with CMN. My CMN covers my whole right arm and hand as well as that, I have multiple large naevi on my back and…
It’s a long way to Tipperary! Or is it? As we were planning our annual support event for Dublin Zoo in October this year, we had a brainwave to host another gathering somewhere else in the country. Ireland’s not that big and with our positive “sure it’ll be grand!” attitude, we embarked on hosting two…
Following the success of our Ireland Regional Gathering to Tayto Park last year, we wanted to choose another venue which would have lots of activities to offer for our members and their families. Jungle NI offered a multi activity package with the opportunity to challenge a Rodeo Bull, bounce on bungee trampolines, pedal on the…
We had a great time at the NW and N Wales regional gathering at Farmer Ted’s in April. The children had plenty of things to do, from shows, tractor rides, petting the animals, slides, outdoor play areas, maze, jumping pillows, etc. The weather was very kind to us and we all gathered for a lovely…
This News Article was written by our South East Regional Contact, Diane. Earlier this month I had the honour of representing Caring Matters Now on our stand at the British Association of Dermatologists (BAD) Annual Conference in Liverpool. For three days, professionals whose daily work revolves around all matters skin-related came to the ACC, Liverpool…
