Rachel’s Story

On 1st August 2012 at 1.28am our beautiful little daughter Éirinn entered the world in somewhat dramatic fashion. Looking back, I can honestly say that this was a blessing in disguise…after a 21 hour labour, Éirinn was placed on my chest and I noticed a little mark on her left ankle. She didn’t make a…

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Cori raises £300 for CMN

Cori aged 10 had the idea for everyone to make a donation to have a guess on the gender and weight of his mums bump. He managed to raise £300 in donations when his baby sister was born and was able to raise awareness about CMN. He also put a donation box and leaflets around…

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Lily-Mai small change amnesty

Lily-Mai (Year 2) would like to thank all the children, parents and staff of St Marys School, Shackleford who contributed generously in the recent “small change amnesty” organised by Lily-Mai who has CMN. In total, the contributions amounted to a total of £32.08 which is fantastic. Combined with other collections from family, friends and colleagues…

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Charlotte’s Teddytastic Fundraising

The event I organised was a ‘Guess the name of the Teddy’ competition which I held in school for one week at lunch time. People who entered my competition picked a name from a long list and one winning name was drawn by a teacher at the end of the week. I did the competition…

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Phoebe raises awareness of CMN in a big way!

Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she…

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Genetic Disorder UK Grant

It is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK.  This grant is to cover the costs of the CMN Activity Weekend 2014.  The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are…

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THEY DID IT!

The CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions…

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