Zelma Jooste & Family

Zelma’s Story

My name is Zelma, I am from South Africa, and this is my personal story. I remember the overwhelming joy my husband and I felt when I found out that I was pregnant. We were married only for 3 months, but we could not wait to start a family. I had a pretty normal pregnancy,…

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Silence is Golden

A sponsored Silence £1000 raised for CMN – by NOT speaking for 24 hours This challenge may sound easy for many, how difficult can it be? But for an experienced sales person not speaking is like asking an accountant to not use a spreadsheet or painter not to use a brush. Paul loves his Rugby…

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Fabulous Fundraisers

Well, you have all been actively fundraising for Caring Matters Now and we would like to say well done and… Thank you, it means so much Here is just a selection of the activities that have been taking place! Tricia (Grandma to Fay) and the staff at Barclays Bank, Cambridge held a fundraising raffle and…

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Participation at the 2011 European CMN Conference

Dr Kinsler will be speaking at the 2011 European CMN Conference to be held in Tübingen, Germany on 6th and 7th May 2011. She will be accompanied by many International Specialists who are focussed on Congential Melanocytic Naevi and Neurocutaneous Melanocytosis. Such collaboration of expertise will hopefully increase the understanding of this rare and potentially…

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Jeans for Genes Awards Grant

We are very pleased to announce that Caring Matters Now has been awarded a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. In return for the grant, we need to raise awareness about Jeans for Genes Day and motivate the public…

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Nevus Outreach Conference in Dallas

Over the past 12 months Caring Matters Now has been developing contact with Nevus Outreach, which is a US based support group for CMN. In November 2009 Mark Beckwith, the Executive Director of Nevus Outreach, attended our CMN Liverpool family day. He was so enthused having met our families and seen what our support group…

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My story by Sheila Mackenzie

Sheila’s Story

I am an older mother; Eva was born when Colin and I were in our forties. She was the little girl we had waited for, for so long! I went into hospital on the eve of my birthday. The labour was long but little did I know that this procedure would go on through the…

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Eva’s Story

My name’s Eva and I am 13 years old. I was born on the 14th May 2003, which is actually my mum’s birthday! My hobbies include; running, cycling, swimming, art, singing, drama, dance and guitar. I want to be an actress, singer and dancer when I am older but I would also like to be…

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How we raise and spend our money

How we raise our money The short answer is – we rely on you! Last year, we were really worried that Dr. Kinsler’s research would stop due to lack of funds. We asked everyone to pitch in and you did! As a result, we had our best fundraising year yet. Over £44,000 was raised. Later…

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