South West Regional Gathering
15th June 2024
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My name is Phoebe, I am 16 and I was born with a giant CMN on my face and satellites all over my body. The process to remove my facial nevus began when I was one week old and finished when I was six. I have a skin grafted face and over 500 satellite Nevi.…
We are excited to announce further developments in our adult support team with the introduction of a new support contact for our older teens and young adult members.
I’m Katy, and the last time I wrote my story for Caring Matters Now, I was 12 years old and had just started at secondary school. Since then, I’ve danced with the English Youth Ballet, competed with my university dance teams, and worked at Camp America. More recently, I’ve worked on a cruise ship and…
Caring Matters Now have successfully secured a grant from VTCT Foundation and have teamed up with Centre for Appearance Research to create a resource to support young people with Congenital Melanocytic Naevi. This will be a freely available resource that contains important information about CMN and how to cope with common issues that young people with CMN may face.…
In conjunction with Rare Disease Day 2021, Caring Matters Now is partnering with CMN patient support groups across the world to raise global awareness of Congenital Melanocytic Naevus… and you can join in with us!
A huge THANK YOU and CONGRATULATIONS to all those who have completed a monthly challenge so far!