Our Strategy - Caring Matters Now

Building on strong foundations, our five-year strategy marks a new chapter in our journey. It sets out a clear roadmap for expanding support, advancing research, and raising awareness, underpinned by long-term sustainability and robust governance.

Our vision remains unchanged: to ensure that everyone affected by CMN receives the support, understanding, and hope they deserve. Through this strategy, we are committed to ambitious goals, innovative programmes, and meaningful partnerships that will shape the future of CMN care and advocacy.

The next five years present a powerful opportunity, and together, we will continue to create lasting change.

Read Our 5-Year Strategy

Our support strategy

To help improve the quality of life of those affected by CMN through:

Immediate Support

To offer face-to-face support
To offer regular contact by phone / email
To support the arrangement of consultation appointment at the CMN clinic
To connect members with one another
Distribute support packs to new members

Long-term Support

To hold an annual support conference in the UK
To hold regional support gatherings across the UK
To develop our charity support contact structure
To offer and continually develop a library of support literature materials
To offer annual psychosocial workshops and projects
To report regularly on research developments and findings

Critical Care

To offer emergency support visits
To organise and fund memory trips
To offer specialised bereavement support

Our awareness strategy

To raise national and international awareness of CMN through:

Present the work of Caring Matters Now at UK medical conference
Distribute the CMN medical booklet to those working within the medical profession
Engage with media outlets to showcase the work of Caring Matters Now
To use social media platforms to showcase the work of Caring Matters Now
Develop partnerships with international CMN organisations
To implement special one-off awareness projects

Our research strategy

To advance the pioneering CMN research to ultimately develop more effective treatments through:

Fund CMN research projects
Fund CMN research staff
Fund Caring Matters Now Research Fellowships at the Institute of Child Health
Recruit members to participate in CMN research at Great Ormond Street Hospital
Seek external funding grants for the CMN research

The next five years will be defined by bold action, deeper connection, and a commitment to striving towards ensuring every person affected by CMN feels seen, supported, and empowered.

Read Our 5-Year Strategy