Rare Disease Day - 28th February 2015

A special week for Didier and his mum!

On the 8th July, we had a very special little boy come and visit us here in the UK from Columbia. Didier, who featured in the channel 4 ‘Turtle Boy’ documentary in 2011, captured the hearts of all who watched how he struggled living with his Congenital Melanocytic Neavus covering the majority of his body and the journey he’d undertaken in having his CMN removed with extensive surgery. The documentary also featured Dr Kinsler and information about the CMN research and also the Caring Matters Now charity. Since the documentary was aired, a small group of folk worked hard in making it possible for Didier and his mum to visit us here in the UK for one week. Didier had 6 full days experiencing the sights of London, meeting children affected by CMN for the very first time, taking part in the CMN research at Great Ormond Street Hospital and being featured on national television. Amazing memories were created for Didier, his mum and all those involved. Here is a short picture diary of Didier’s week in the UK… enjoy!

Picture Diary

Sky News Interview

If you would like to support Didier and also the work of Caring Matters Now please visit Just Giving.

Read more about Didiers visit here.

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