My daughter Scarlett was born nearly two years ago with a very rare skin condition called Congenital Melanocytic Naevus (CMN). No one in Cheltenham hospital had ever seen the condition and therefore were unsure where to send Scarlett, as she was not actually ill. To cut a long story short eventually we got to Great Ormond Street where a number of tests were taken. It was a nightmare having a child with something so rare that even in the medical dictionary it is only one paragraph long.
Through GOSH I have meet a couple of other people with CMN, and the same story is told, that after giving birth you are left, not knowing who to turn to with a disfigured baby in your arms. So we
have decided to re-launchthe charity Caring Matters Now to support sufferers of CMN and their families and also to raise money for the research, taking place at GOSH.
As yet Scarlett is still unaware of her appearance and as a family we are trying to make her as confident and outgoing as possible so when the name calling and bullying starts (as it will because she is different) she hopefully! will be able to handle it. As a family we are learning to cope with a baby that’s different, especially our older daughter Isabella who found it hard in the beginning as her sister didn’t look like her doll (baby Annabelle)
Scarlett is 1/50,000 with her marks, but to us, she is 1 in a million, our very own Scarlett O’Hara and as a family we are trying to give her the attitude and personality to say “Quite frankly my dear I don’t give a dame!!!!”