Elspeth's Story

Elspeth’s Story

As a fifteen-year-old with CMN, which covers my back arms and legs, I have endured many hard times as well as amazing and inspiring experiences. Having CMN evidently makes me stand out when I don’t necessarily want to and makes people stare when (you guessed it) I don’t want people to stare. Having these special…

Details
Anne's Story

Anne’s Story

My name is Anne and I have a giant CMN that covers my back and multiple smaller moles mainly on my legs. The main CMN was almost black when I was born. It gradually lightened over the years and is now, at age 60, light brown. There was very little information available for my parents…

Details
Ryan

Ryan’s Story

My story by Ryan (with a little help from mum) I was born on the 10th December 2003 with CMN and NCM. My birthmark covers my bum and I have hundreds of smaller moles all over my body. The moles on my brain also cause me to have learning disabilities and I also have ASD.…

Details
Jasmin

Jasmin’s Story

As a teenager with CMN, I have been through a lot, including name calling and mimicking. My CMN is located on my nose and right cheek. I had my first of 6 operations at 8 months of age at Great Ormond Street Hospital, all performed by the wonderful Mr Bulstrode. I first attended a Caring…

Details
Cheryl

Cheryl’s Story

Hello, my name is Cheryl and I was born with CMN all over my body. I did not have CMN on my face when I was born; they started to develop a few weeks after birth. Up until around 11 years old I was a happy child and people staring or asking me questions about…

Details
Kathy

Kathy’s Story

Emotional, Empowered and Excited My experiences of living with CMN I was born with CMN covering most of my back and several more CMNs on my legs too. Throughout my childhood I often faced tough days with being stared at and called names on the school playground. Those early years were difficult; I can remember…

Details

Stacey’s Story

Hi, I’m Stacey and I was born with a large bathing trunk nevus and multiple satellites all over my face and body. Despite being different to other kids I had a really good childhood and I owe so much of this to my parents. Mum and dad never treated me any different. We went on…

Details

Eve’s Story

Our Warrior Princess Written by Eve’s mum – Sabrina After a perfectly normal pregnancy, our second daughter Eve was born on the 8th August 2018 with a very rare skin condition called Congenital Melanocytic Naevi (CMN). This condition is caused by a gene mutation resulting in more than half of Eve’s body being covered in…

Details

Alkin’s Story

Introducing Alkin Emirali Alkin is a screenwriter, director, lecturer and an established martial arts instructor.  He was born with a few prominent moles on his face that have proliferated throughout his life. He didn’t meet anyone else affected by CMN until his late thirties, when he connected with Caring Matters Now.  Alkin is one of…

Details
Callum

Callum’s Story

Callum Callum is an easy going 17-year-old who lives in Gloucestershire.  Callum is studying to be a software developer, with a passion for mountain climbing, cycling and running.  Callum was born with CMN covering the whole of his right arm and hand, along with smaller CMN marks over the rest of his body. Callum grew…

Details