Rare Disease Day - 28th February 2015

Top 5 Questions Answered

We want to be able to answer the 5 most common questions asked by families affected by CMN.  Whether you are a parent of a child with CMN, a child yourself with CMN or an adult affected by CMN, get involved and email us your question and we will select the top five questions and provide an answer. Your question may be the one question another family wants to ask but can’t or it could help a new family just beginning the journey.

We will select an appropriate person to answer your question based on their own experiences as well as the knowledge gained by being involved with the support group for many years.

Please send us your question using the form below and watch this space…


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