Orla

Orla’s Story

Introducing our Young Ambassador Orla. This Air Cadet with CMN has successfully navigated her way through tricky times building inner strength. Finding peace with her birthmarks will help her soar through life. My name is Orla, I am 14 and I was born with CMN. I had a CMN on my lower back removed when…

Maddie

Maddie’s Story

My name is Maddie, I’m 15 and was I was born with CMN. Living with CMN, although it is very challenging at times, has also been a positive experience for me. When I was little my parents always told me that I had ‘special skin’, and this helped me with my confidence around my CMN…

Ethan-Blake

Ethan-Blake’s Story

Ethan-Blake was born on September 12th 2015 with a birthmark covering the whole of his back from his shoulders to his bottom and around his sides. After a few days of worrying and wondering we met a paediatrician who was able to diagnose him with Congenital Melanocytic Naevi (CMN) and then at 18 months with…

Elspeth's Story

Elspeth’s Story

As a fifteen-year-old with CMN, which covers my back arms and legs, I have endured many hard times as well as amazing and inspiring experiences. Having CMN evidently makes me stand out when I don’t necessarily want to and makes people stare when (you guessed it) I don’t want people to stare. Having these special…

Hope

Hope’s Story

2-year-old Hope travelled with her parents all the way from Australia to feature in the HOW DO YOU C ME NOW? exhibition series.  Here you can read Hope’s story, written by her incredible mum, Karyn.  Four years ago, Matt and I were excited at the prospect of meeting our baby.  Not sure if we were…

Eva’s Story

My name’s Eva and I am 13 years old. I was born on the 14th May 2003, which is actually my mum’s birthday! My hobbies include; running, cycling, swimming, art, singing, drama, dance and guitar. I want to be an actress, singer and dancer when I am older but I would also like to be…

Katy’s Story

My name is Katy, and I am 11, nearly 12, years old. I have a CMN on the back of my right knee. When I was 18 months old, I had an operation to remove it. It was lasered off, using CO2 and Ruby Lasers, and then I had various bandages and dressings for 3…