Rare Disease Day - 28th February 2015

Tell us your story

We are looking for people to contribute to the personal stories area of our website. It’s a chance for you to help others by providing information about your experiences with CMN or the journey you have been through with your child. You can include a variety of images to be included with your story. So please share your story and fill in the online form below.


Tell us your story

Enter your name:

Enter your email address:

Enter your story below:

Upload your images (please keep images below 1MB)

Image 1:

Image 2: (optional)

Image 3: (optional)

Image 4: (optional)

Please tick the box below if you agree that your story and images will be used for the 'personal stories' area of the CMN website.
I am submitting photos and a story of myself and confirm I am over 18 years of age and give permission for their use.I am the legal parent/guardian of the child in the photos and story and give permission for their use.

Please enter these numbers / letters in the box below