Rhys’s Story

Hello, my name is Lynne, I have a son called Rhys, and he is 10yrs old and has CMN. Until 6 weeks ago we had never met anyone else with this condition. We met Jodi Unsworth in Liverpool, and many other lovely people who had children with this condition; we also met the children, which…

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Scarlett’s Story

My daughter Scarlett was born nearly two years ago with a very rare skin condition called Congenital Melanocytic Naevus (CMN). No one in Cheltenham hospital had ever seen the condition and therefore were unsure where to send Scarlett, as she was not actually ill. To cut a long story short eventually we got to Great…

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