At the beginning of January we wrote to various organisations and local attractions to see if they would donate prizes for a raffle. We had an amazing response with 19 prizes being donated in total. We sold tickets to friends, family and my mums work friends and sold pink and blue cupcakes on the day [...]

I went with mum and dad, some of the mums from school, my friends from school, my uncle and my big cousin Jordan to Cambridge United Football Club and we collected money in buckets for the charity. It was very cold and hard work but we raised £204.70. We also got to watch some of [...]

Dr Kinsler’s CMN research work has recently been awarded one of five prestigious equal poster prizes at the Academy of Medical Sciences meeting for Clinician Scientists 2013, which is a national meeting of clinical researchers. This was awarded for the recent NRAS findings which you can read more about here. Caring Matters Now is a [...]

The London Family Support Day was held again at the Seven Dials Club in Covent Garden and proved a huge success looking at the feedback forms received. The kids enjoyed the entertainer and meeting new friends with CMN and the parents spend time talking and supporting one another. Dr Kinlser presented her recent research findings, [...]

      There has been a very exciting new finding in our study of the genetics of congenital melanocytic naevi (CMN).  We have discovered that the genetic change (called a mutation) that causes CMN and neurocutaneous melanosis is in a gene called NRAS.  We found this gene mutation in 80% of the cases we [...]

Sky Sports celebrities are organising a ‘Dancing with Sky’s Stars’ competition at Silverstone race track to raise funds for Caring Matters Now and Rett Syndrome Research Trust UK… and you are invited! 
 Mel Bartlett, mum of Ava who has CMN, is the senior director at Sky Sports News.  Mel and her colleagues have rallied [...]

By Louise Lacy (mother of Charlotte, age 2 yrs) As fliers were distributed to family, friends, neighbours and school book bags, I began to worry my love of quiz nights was not shared by the masses. But during the weeks that followed, there was a steady stream of requests for tickets and more often than [...]

We thoroughly enjoyed yet another fun-filled, action packed weekend at PGL this year and the feedback suggested we run the CMN Activity Weekend annually. So that’s what we are doing. When – 26th – 28th July 2013 Where – Caythorpe Court situated close to Sherwood Forest in Lincolnshire. Price – £119 per person. This price [...]

What a success this years Family Activity Weekend was, fun was had by all that attended. The event was held from Friday 21st to Sunday 23rd September 2012 at Boreatton Park situated in 240 acres of Shropshire countryside. A video review of the weekend is below.  

Check out the documentary on Dider, a small boy with extensive CMN. It features a Caring Matters Now Family Day and many of our CMN kids as well as Dr Kinsler and Mr Bulstrode from Great Ormond Street Hospital.