Latest News
28th June 2010
My Story by Lucy Hardwidge
I had a very good and healthy pregnancy and I was a little upset at the thought of losing my bump but at the same time extremely excited about meeting our new arrival. I was four days overdue and with my blood pressure rising the decision was made to induce labour, so on Sunday 13th February 2005 we were admitted to Addenbrookes Hospital in Cambridge and I started the induction process that same day.
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22nd March 2010
Exciting Developments at Caring Matters Now
Well, as you may have already seen the Caring Matters Now Support Group has developed immensely over the past 2 years, thanks to all the hard work and commitment of the volunteer Trustees, regional support contacts and the CMN members.
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29th January 2010
Fundraising Story – Sue Gollop
I am Amy's Granny Sue and chair of our local University of the Third Age here in Bridlington. Our U3A band, the U3Mix, with the help of a local pub, organised a Party Night for Amy to raise funds for CMN.
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29th January 2010
Fundraising Story – Claire Byfleet
We first heard about Caring Matters Now through the interview that Jodie Unsworth & Dr. Kinsler did on This Morning and since watching the program we have been in contact with the charity & they have really helped us by showing us that we are not the only ones in a sometimes difficult situation. It also helped when we attended the Cambridge family day as we were able to draw on other peoples experience for support.
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28th January 2010
My Story – Barry Illingworth
Although it is 35 years ago, I vividly remember my wife Marion and myself driving down to the Hospital at 5.30am on a Sunday morning with me telling her “I’ll be taking you home you know! It’s only stomach ache you’ve got!” (because she had been eating fruit the night before). It is a good job I’m not in the medical profession because Mark and Shelley were born only a couple of hours after our arrival about 7.30am
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27th January 2010
A Big Sister’s Perspective – Georgia-Louise
My name is Georgia-Louise Brown and for 9 ½ years now I have grown up with a younger brother who has a CMN, his is situated mostly on his back. During that time we have had a few ups and downs like most kids but generally I have put up with him. As he has grown up we have had the usual arguing you expect from a boy as well as the “long discussions” we have about his back.
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15th October 2009
The Pink Chicks running for CMN!
In a mad moment Susanna and Clare have decided to make a difference by completing 10 runs and raising £10,000 for Caring Matters Now over a 12 month period - starting June 6th 2009 with a 5k race. The girls thought they should start off gently! As well as the running they are having fun trying all sorts of other fundraising events – Cake sales, A Cinema film premiere and a “Getting ahead for Christmas” afternoon in November.
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31st July 2009
Amy's Tea Party
On Saturday 19th July, Amy Gollop, along with her mum and dad, arranged a tea party to help raise funds for the Caring Matters Now Support Group. Amy sold tickets to family and friends for £2. Amy sold cakes along with various crafts and art-work designed by Amy's aunt and friend which were also available to buy on the day.
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17th July 2009
Welcome Trust grant awarded to Dr Kinsler and the CMN medical research!
Dr. Kinsler has been awarded a grant by the Wellcome Trust to fund research into CMNs until August 2012. The Wellcome trust is a UK charity organization that funds innovative biomedical research to support the brightest scientists with the best ideas. The grants awarded are hotly contested with many more applicants than grants given out. Being selected a recipient of the grant is an admirable achievement and a direct result of Dr. Kinsler’s continuing commitment and dedication to CMN research.
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3rd May 2009
Fay's fundraising coffee morning news
As part of the national coffee morning for Caring Matters Now I decided to hold my own coffee morning at home and invite a few friends!! Well, the numbers increased to over 30 and my house was bursting at the seams with friends, family and neighbours all wanting to give their support to a charity very close to our hearts.
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17th April 2009
Rachel walks for CMN
On Saturday 11th April 2009, Rachel Ilhan raised over £500 for the CMN research by walking 5 miles along the English coast. Rachel is 11 years old and has CMN covering her back and stomach. Rachel's mum, Wendy, said "Rachel is a happy, confident, outgoing 11 year old who just happens to have CMN.".
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3rd March 2009
Caring Matters Now receives £4000 from Jeans for Genes
Caring Matters Now has been selected as recipient of a £4,000 grant from Jeans for Genes - a national children’s charity which raises money for the care of children with genetic disorders. Every half an hour a baby is born in the UK with a genetic birth defect or genetic disorder which could seriously affect their lives. Jeans for Genes helps to provide much needed help, support and information for children and their families. They also invest in ground-breaking research to establish the causes of these conditions and how they can be treated.
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2nd March 2009
Watch Jodi and Dr Kinsler's interview on ITV's This Morning
Watch Jodi and Dr Kinsler on the sofa with Fern and Eamonn on ITV's This Morning TV show.
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26th April 2008
Help Colin raise funds for the Caring Matters Now Support Group
Even amongst health professionals, awareness of CMN is low because it is a rare condition, so our first challenge as parents was to find information about the condition and what treatments were available. Fortunately, we discovered the Caring Matters Now website and were directed to the centre of expertise at Great Ormond Street Hospital led by Dr. David Atherton.
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3rd April 2008
My Story by Jodi Unsworth
My name is Jodi Unsworth (27) and I have a large Congenital Melanocytic Naevus (CMN), which covers 80% of my body. CMN is a large, dark brown/black, hairy birthmark which covers areas of the body.
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24th March 2008
BABY PASCALE by Jessica Ma
I was aware that the midwives were not handing her to me right away. The midwife mentioned the baby was a bit slow to cry so she was going to administer some facial oxygen and did so. Then I heard the baby cry but they still did not bring her to me. The two midwives and my husband were hovered around the corner of the room with the baby and I heard them talk about a “birthmark”. Finally, they brought her to me wrapped in a towel. I could see what was indeed a very big, dark mark on her abdomen.
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28th February 2008
New Caring Matters Now website launched!!
After many months of hard work, our new look website is launched and is now live on the world wide web! The new design has been developed to incorporate our new logo and company colours and will be frequently updated with all our latest news and information about the CMN family days and all our other activities.
