Rare Disease Day - 28th February 2015

GDPR And What This Means To Our Members & Friends

Do you still want to hear from us?

One of the biggest changes to UK data privacy law comes into effect on 25th May 2018.

GDPR stands for General Data Protection Regulation. It’s the biggest change to UK data privacy law for 20 years and creates a single set of rules that better protects personal information for people across the EU. All organisations must review how they manage all personal data, such as customer addresses and staff details, to ensure they meet GPDR requirements.

We don’t want these changes to stop us from being able to continue to keep you up-to-date on all the remarkable work of Caring Matters Now and the support provided to all those affected by Congenital Melanocytic Naevi (CMN). To ensure we are fully compliant with the new GDPR legislations and to ensure we can still keep in touch with you and inform you of the pioneering CMN research updates, and all the exciting fundraising and support events coming up, we need you to ACT TODAY and re-register with us.

The relationship you very kindly entered into with Caring Matters Now, was due to a family member or someone you know being affected by Congenital Melanocytic Naevi (CMN) or you generously gave your time to participate in a fundraising event or have donated to our cause and we want to continue to share the good news and further developments of our charity with you.

The only way we can continue to communicate with you is if you re-register on our website.

By acting today and re-registering, we can ensure you do not miss out!

If you are a Caring Matters Now Member please click HERE to re-register
(Members are adults with CMN or parents of a child with CMN)

If you are a friend of Caring Matters Now please click HERE to re-register
(Friends are anyone else wanting to be kept informed e.g. grandparents, aunts, uncles, friends, donors, fundraisers, schools, corporate sponsors)

If you do not re-register to accept communication from us, then sadly we have no choice other than to stop sending you any future news or information.

Why you should re-register:

  • so we can keep you informed about the vital research being carried out by Dr Veronica Kinsler and her team at Great Ormond Street Hospital and The Institute of Child Health, London
  • so we can keep you informed about how your donations and support are helping those affected by Congenital Melanocytic Naevi (CMN)
  • so we can keep you informed about future fundraising events

Rest assured:

  • we will never pressure you to make donations or take part in events
  • you can opt out of receiving communication from us at any time

ACT NOW! Use one of the links and please re-register TODAY!

Thank you once again for your continued support, we rely so much on the support of our members, their family and friends, we really hope you will allow us to stay in touch.

Jodi Whitehouse

Caring Matters Now Founder and Chief Executive

 

Please rest-assured Caring Matters Now takes you privacy seriously and will only use your personal information to create your personal profile, fulfil any requests, and to help deliver and improve our services to you. We promise to always keep your details safe and we will NEVER share or sell your details with unauthorised third parties. If you change your mind about hearing from us, you can stop receiving our updates at any time by emailing info@caringmattersnow.co.uk or calling 07786 458883. Please take some time to review the Caring Matters Now Data Protection Policy.

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