Upcoming Events

Dancing with Sky’s Stars – Raising funds for Caring Matters Now & Rett Syndrome Research Trust

Sky Sports celebrities are organising a ‘Dancing with Sky’s Stars’ competition at Silverstone race track to raise funds for Caring Matters Now and Rett Syndrome Research Trust UK… and you are invited! 
 Mel Bartlett, mum of Ava who has CMN, is the senior director at Sky Sports News.  Mel and her colleagues have rallied [...]

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Family Activity Weekend – July 2013

We thoroughly enjoyed yet another fun-filled, action packed weekend at PGL this year and the feedback suggested we run the CMN Activity Weekend annually. So that’s what we are doing. When – 26th – 28th July 2013 Where – Caythorpe Court situated close to Sherwood Forest in Lincolnshire. Price – £119 per person. This price [...]

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CMN Support Day (formerly known as Family Days) – Liverpool 9th November 2013

The CMN support group hold support days across the UK throughout the year. The aims of the support days are to: Give one-to-one support to those affected by CMN and their families Give medical advice to those affected by CMN and their families Give an opportunity for CMN members to meet and develop friendships The [...]

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CMN Support Day (formerly knows as Family Days) – Scotland 10th August 2013

The CMN support group hold support days across the UK throughout the year. The aims of the support days are to: Give one-to-one support to those affected by CMN and their families Give medical advice to those affected by CMN and their families Give an opportunity for CMN members to meet and develop friendships The [...]

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CMN Chat & Play Day- Bristol and Beyond 18th May 2013

** No attendance from Dr Kinsler at this event** The CMN Chat & Play Days are similar to that of the CMN Support Days but without the attendance of Dr Kinsler.  Organised by the regional support contact and attended by some of the CMN trustees. The aims of the Chat and Play Days are to: [...]

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7 Challenges Across 7 Continents

Yes, you read the title correctly, 7 challenges across 7 continents, a unique theme for future CMN Challenges. Over time we plan to conquer seven varied challenges on seven continents allowing everyone the opportunity to participate, so no excuses! Mt Kilimanjaro – Done and Dusted! With thanks to the hugely successful and dedicated team back [...]

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CMN Family Day – Liverpool 24th November 2012 (date changed)

*** NEW DATE – The date for the Liverpool Family Day has changed from 10 Nov’ 12 to 24 Nov’ 12 *** The CMN support group hold family days across the UK throughout the year. The aims of the family days are to: Give one-to-one support to CMN sufferers and their families Give medical advice [...]

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