Rare Disease Day - 28th February 2015

Latest News

Amy & Alex Run the Dronfield 10K

Dronfield is the small town where we grew up and they have held a 10k for the past 22 years! This year myself and Alex decided to challenge ourselves to run the tough 6.2mile route for Caring Matters Now. We both completed the course in exactly the same time of 1:03:56. Alex ran the course […]

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Success of 2014 Fundraising

2014 has been an epic year for fundraising and we would like to say a massive thank you to you all for doing your bit! But we must not rest on our laurels! We have seen an increase in corporate support, schools fundraising and so many more individuals getting involved in one way or another. […]

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£50,000 Target Reached! THANK YOU

Recruitment for this post will commence shortly and we hope to have news of the newly appointed member of the CMN Research team in the July newsletter. This has been achieved through many different activities such as the CMN Dinner Dance, a very successful marathon run which raised over £10,000 and all of you taking […]

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Help make a difference to the lives of those affected by Congenital Melanocytic Naevi!

With your help we really can make a difference to the lives of those affected by CMN and NCM. Our annual fundraising target is set at £100,000 and this is achievable! Appealing to the general public to raise funds for rare disorders such as CMN is always a challenge, but a challenge not unmanageable for […]

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The CMN Charity Dinner Dance – Review

What an amazing night had by all that attended the first ever CMN Charity Dinner Dance on 20th September 2014 at the prestigious Intercontinental Hotel on Park Lane, London. The support we received from small corporates for this event was remarkable and the event could not have happened without such generosity. The very talented YPL […]

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Support our £50,000 Fundraising Campaign for CMN Research

Support our £50,000 Fundraising Campaign for CMN Research

This month we have launched our fundraising campaign of raising £50,000 for the CMN research. We are committed to supporting Dr Kinsler’s research at Great Ormond Street Hospital. Dr Kinsler has spoken to the CMN trustees about the possibility of funding a CMN Fellowship at Great Ormond Street Hospital. This means, Dr Kinsler will have […]

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Little Acorns Nursery School, Dronfield: Silver Award

Little Acorns Charity Fun Day – Saturday 26 July 2014 The Little Acorns Charity Fun Day is held every year and is a chance for children, parents and friends to come along and have a great day out. With lots of faces being painted, arms sparkling with glitter tattoos, children bouncing on the castle, taking […]

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An interview with Luz Nery (Didier’s mum)

By Juan Galbete Luz Nery landed in London on the 8th of July 2014 with a feeling of uncertainty. Coming from a small coastal town in Colombia, Luz travelled to London with her son Didier, who has CMN. Didier was successfully operated on in 2012 in Bogotá, Colombia. It was an operation which required the […]

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A special week for Didier and his mum!

On the 8th July, we had a very special little boy come and visit us here in the UK from Columbia. Didier, who featured in the channel 4 ‘Turtle Boy’ documentary in 2011, captured the hearts of all who watched how he struggled living with his Congenital Melanocytic Neavus covering the majority of his body […]

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Didier’s visit to the UK

We are extremely excited to announce that a very special little boy is coming to visit us here in the UK! On the 6th July, Didier and his mum are travelling to the UK and spending a week in London. Didier became a very much-loved little boy across the UK, after the documentary ‘Turtle Boy’ […]

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Why I took part in the ‘Caring Matters Now Coffee & Cake Morning’

Why I took part in the ‘Caring Matters Now Coffee & Cake Morning’ By Tanith When my daughter Isabelle was born in 2009, she had a large brown birthmark on her leg. The doctor came to see us the following day and explained that it would have to be removed due to the increased risk […]

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Phoebe raises awareness of CMN in a big way!

Phoebe raises awareness of CMN in a big way!

Every year, the school Phoebe attends holds a Speech Competition. The kids have to talk for a maximum of 3 minutes on a topic of their choosing. Phoebe decided it should be about her and her birthmarks. The teacher and the kids – all of whom have never asked Phoebe about her marks because she […]

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Genetic Disorder UK Grant

It is with great excitement to announce that Caring Matters Now has been granted £4,000 from Genetic Disorder UK.  This grant is to cover the costs of the CMN Activity Weekend 2014.  The funds will pay for all our children and adult with CMN to attend the weekend free of charge. The CMN trustees are […]

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THEY DID IT!

The CMN team took on the skydiving challenge on Saturday 22nd March 2014. The team of 18 met early Saturday morning at Langar Airfield, Nottingham to face their fears! Team members had travelled from all corners of the UK, from as far up as the Highlands, to as low down as Kent! The weather conditions […]

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Caring Matters Now receive £10,000 from Children in Need!

The CMN trustees are very pleased to announce that Children in Need have granted £10,000 towards the work of Caring Matters Now.  This is AMAZING news as the grant will increase the profile of our charity, as well as funding our work!  The grant will fund all our support days in 2014.  We are so […]

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Holly McCrossan

It is with great sadness that we share the news of Holly McCrossan. On Friday 21st February 2014, Holly (aged 2) passed away after suffering with CMN syndrome. Holly’s parents are overwhelmed from the love and support expressed by you all and they would like to thank everyone who has shown them so much care […]

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News for CMN Adults

News for CMN Adults

Exciting Developments for our CMN adult members This year is a big year for our adult support developments and we are excited to share with you all a little bit about the history of the charity and the plans we have with regards to adult support. As an adult with CMN, I do understand the […]

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Lincoln FC Youth Academy Announces CMN as Charity Partner

Lincoln FC Youth Academy Announces CMN as Charity Partner

We are delighted to announce that Lincoln City Football Club Youth Academy have chosen CMN to be their charity partner. Speaking on hearing the result, Jodi Whitehouse, our Chief Executive, said: “We at Caring Matters Now are absolutely delighted to have won this vote and very much look forward to working in partnership with Lincoln […]

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Crabtree & Evelyn Wimbledon Charity Event

Crabtree & Evelyn Wimbledon Centre Court Shopping Centre In Store Charity Event – 24th September I heard about it from a support group called Caring Matters Now that I am associated with due to our son being born with a rare condition Congenital Melanocytic Neavus which has recently been discovered to be a syndrome.  Caring […]

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Prestigious Poster Prize for NRAS Finding

Dr Kinsler’s CMN research work has recently been awarded one of five prestigious equal poster prizes at the Academy of Medical Sciences meeting for Clinician Scientists 2013, which is a national meeting of clinical researchers. This was awarded for the recent NRAS findings which you can read more about here. Caring Matters Now is a […]

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