Rare Disease Day - 28th February 2015

Latest News

Caring Matters Now receives support from the Sporting Bears Motor Club

Caring Matters Now receives support from the Sporting Bears Motor Club

We recently received the wonderful news that Caring Matters Now would be a Sporting Bears Motor Club benefiting charity in 2015. Thanks to The Ranchhod family who have a son with CMN and John Redshaw from the “Midland Bears” for the nomination, we will be receiving support from the Sporting Bears Motor Club “Dream Rides” […]

Read more...

Dr Kinsler is awarded the Spinoza Chair for 2015

Dr Kinsler is awarded the Spinoza Chair for 2015

The Organization Committee of the SPINOZA CHAIR, set up by the Amsterdam University Association on behalf of the Faculty of Medicine of the University of Amsterdam, has awarded the SPINOZA CHAIR for 2015 to Dr Veronica Kinsler (MD, PhD, MRCPCH) from October 26 until October 29, 2015. The chair was established in 1995 by the […]

Read more...

Christmas Card Competition Winners

Christmas Card Competition Winners

The CMN trustees were amazed by the amount of designs submitted for our Christmas Card Competition. It was such a hard task selecting the 8 winning designs! After much deliberation, the following designs were selected to be included in our CMN Christmas Card Packs 2015. Congratulations to all our winners! You can now purchase your […]

Read more...

CMN Coffee Morning – Hosted by St.Fillian’s Nursery in Support of Yasmin

When Yasmin started nursery at age 3 in 2013, I provided her Key worker with the information booklet I had downloaded from the Caring Matters Now website. I spoke about things that they should look out for, how they could support her and the complications that could arise as a result of CMN. Her teacher […]

Read more...

CMN Charity Challenge – Avenue of Volcanoes – September 2015

UPDATE – Our 3 CMN Dads did it!!!!! So, on the 20th September 2015, three incredible dads of children with CMN, reached the summit after a gruelling 9 days of trekking and a final 8 hours of glacier climb with crampons & ropes. These guys are incredible! This was a gruelling challenge, mentally and physically […]

Read more...

Isabelle is awarded the CMN Silver Champions Award

As this was our 2nd Coffee and Cake event, we were slightly more organized! We gathered a small team of family and friends to help out on the day with tombola, raffle, puppet show and bouncy castle, as well as a fun disco and face painting donated by Starz Party. We used our local church, […]

Read more...

Bridlington Regional Gathering Review

‘Oh what a lovely day, the day we went to Bridlington’ …and so it turned out to be! The families came, the food was eaten, the sand sparkled, the sea was freezing but best of all the sun came out. All week the Gollop family watched the weather forecast. A Beach Day in the rain […]

Read more...

Brighton Regional Gathering Review

We were very lucky with the weather, it was a real scorcher all morning. We met at a lovely cafe next to a park with a paddling pool right on the beach in Brighton. We were a total of 5 families, with families coming to join us throughout the morning. The children had huge milkshakes […]

Read more...

Dublin Regional Gathering Review

On 6th June 2015, 8 families from all over Ireland attended the second Dublin regional gathering, organised by Caring Matters Now. For some families it was a chance to catch up again and for others it was their first time attending such an event and they were keen to chat to other families affected by […]

Read more...

Devon Regional Gathering Review

Devon Regional Gathering Review

There were thirteen of us who met at Woodlands park on a Saturday morning in June. That’s 3 families. We all got on straight away and I couldn’t wait to go on the water slide, Viking ship and toboggan run with everyone. I could see that everybody was having a good time. We all want […]

Read more...

Calling all budding artists… Christmas Card Competition 2015

Calling all budding artists… Christmas Card Competition 2015

Christmas Card Competition 2015 Calling all budding artists… Caring Matters Now would like to invite children aged between 4yrs – 17yrs to design a Christmas card, which could become one of the official CMN Christmas Cards for 2015!  Four designs will be chosen by the CMN trustees and produced into this year’s charity Christmas cards.  […]

Read more...

The Jessica Ma Award 2018

In December 2014 one of our founding trustees Jessica Ma lost her battle with cancer. Jessica was not only a trustee to the Caring Matters Now charity, but also an amazing, courageous and inspirational friend to many in the charity and beyond. Due to Jessica’s wise and tireless work in managing the charity’s finances over […]

Read more...

Dr Veronica Kinsler wins the coveted Great Ormond Street Hospital 2015 Child and Family Award

We are absolutely delighted to announce that Dr Veronica Kinsler has won the coveted Great Ormond Street Hospital 2015 Child and Family Award. This award is given for a very special individual or team nominated by a patient, parent or carer, who is a great team member and is always welcoming, helpful and expert. There […]

Read more...

Amy & Alex Run the Dronfield 10K

Dronfield is the small town where we grew up and they have held a 10k for the past 22 years! This year myself and Alex decided to challenge ourselves to run the tough 6.2mile route for Caring Matters Now. We both completed the course in exactly the same time of 1:03:56. Alex ran the course […]

Read more...

Success of 2014 Fundraising

2014 has been an epic year for fundraising and we would like to say a massive thank you to you all for doing your bit! But we must not rest on our laurels! We have seen an increase in corporate support, schools fundraising and so many more individuals getting involved in one way or another. […]

Read more...

£50,000 Target Reached! THANK YOU

Recruitment for this post will commence shortly and we hope to have news of the newly appointed member of the CMN Research team in the July newsletter. This has been achieved through many different activities such as the CMN Dinner Dance, a very successful marathon run which raised over £10,000 and all of you taking […]

Read more...

Help make a difference to the lives of those affected by Congenital Melanocytic Naevi!

With your help we really can make a difference to the lives of those affected by CMN and NCM. Our annual fundraising target is set at £100,000 and this is achievable! Appealing to the general public to raise funds for rare disorders such as CMN is always a challenge, but a challenge not unmanageable for […]

Read more...

The CMN Charity Dinner Dance – Review

What an amazing night had by all that attended the first ever CMN Charity Dinner Dance on 20th September 2014 at the prestigious Intercontinental Hotel on Park Lane, London. The support we received from small corporates for this event was remarkable and the event could not have happened without such generosity. The very talented YPL […]

Read more...

Support our £50,000 Fundraising Campaign for CMN Research

Support our £50,000 Fundraising Campaign for CMN Research

This month we have launched our fundraising campaign of raising £50,000 for the CMN research. We are committed to supporting Dr Kinsler’s research at Great Ormond Street Hospital. Dr Kinsler has spoken to the CMN trustees about the possibility of funding a CMN Fellowship at Great Ormond Street Hospital. This means, Dr Kinsler will have […]

Read more...

Little Acorns Nursery School, Dronfield: Silver Award

Little Acorns Charity Fun Day – Saturday 26 July 2014 The Little Acorns Charity Fun Day is held every year and is a chance for children, parents and friends to come along and have a great day out. With lots of faces being painted, arms sparkling with glitter tattoos, children bouncing on the castle, taking […]

Read more...