Yes, you read the title correctly, 7 challenges across 7 continents, a unique theme for future CMN Challenges. Over time we plan to conquer seven varied challenges on seven continents allowing everyone the opportunity to participate, so no excuses! Mt Kilimanjaro – Done and Dusted! With thanks to the hugely successful and dedicated team back [...]
Great Ormond Street Hospital Children’s Charity Blog have recently published a post on their website entitled ‘Speaking to the experts on congenital melanocytic nevus‘. You can read the post by CLICKING HERE.
Research carried out at Great Ormond Street Hospital and the UCL Institute of Child Health has identified that the gene causing red hair – melanocortin-1-receptor (MC1R) – is more common in children with Congenital Melanocytic Naevi (CMN), a rare form of birthmark. CMN are rare brown or black birthmarks which cover up to 80% of [...]
Luke is now 12 years old and was born with a facial and head Congenital Melanocytic Naevus. In September 2011 he faced the next journey of his life in starting secondary school. Luke was to attend Magnus School in Newark. The school were made aware of CMN before Luke started and his new form teacher [...]
Due to popular demand we are making plans for another activity weekend to be held in 2012. Dates are Friday 21st to Sunday 23rd September 2012 at Boreatton Park situated in 240 acres of Shropshire countryside. Back in July we held our first ever activity weekend and it really was a superb weekend. Click here [...]
I am VERY pleased to announce that Mount Kilimanjaro is done and dusted! How amazing the experience was! It is very difficult to summarize this incredible journey, so instead I have decided to include the daily blog updates in the newsletter, along with some photographs. I do hope you enjoy reading all about our adventure! [...]
Maja is two years old and wonderfully enthusiastic about life. She was so keen to come into this world that when it was time to be born (on a frosty December night) she allowed mum and dad a full 45 minutes to get dressed, arrange childcare for her sister, drive to hospital, get admitted to [...]
Dr Kinsler will be speaking at the 2011 European CMN Conference to be held in Tübingen, Germany on 6th and 7th May 2011. She will be accompanied by many International Specialists who are focussed on Congential Melanocytic Naevi and Neurocutaneous Melanocytosis. Such collaboration of expertise will hopefully increase the understanding of this rare and potentially [...]
We are very pleased to announce that Caring Matters Now has been awarded a £4,000 grant from Jeans for Genes — a national children’s charity which raises money for the care of children with genetic disorders. In return for the grant, we need to raise awareness about Jeans for Genes Day and motivate the public [...]
Over the past 12 months Caring Matters Now has been developing contact with Nevus Outreach, which is a US based support group for CMN. In November 2009 Mark Beckwith, the Executive Director of Nevus Outreach, attended our CMN Liverpool family day. He was so enthused having met our families and seen what our support group [...]
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