Dr Kinsler’s CMN research work has recently been awarded one of five prestigious equal poster prizes at the Academy of Medical Sciences meeting for Clinician Scientists 2013, which is a national meeting of clinical researchers. This was awarded for the recent NRAS findings which you can read more about here. Caring Matters Now is a [...]
There has been a very exciting new finding in our study of the genetics of congenital melanocytic naevi (CMN). We have discovered that the genetic change (called a mutation) that causes CMN and neurocutaneous melanosis is in a gene called NRAS. We found this gene mutation in 80% of the cases we [...]
Sky Sports celebrities are organising a ‘Dancing with Sky’s Stars’ competition at Silverstone race track to raise funds for Caring Matters Now and Rett Syndrome Research Trust UK… and you are invited! Mel Bartlett, mum of Ava who has CMN, is the senior director at Sky Sports News. Mel and her colleagues have rallied [...]
We thoroughly enjoyed yet another fun-filled, action packed weekend at PGL this year and the feedback suggested we run the CMN Activity Weekend annually. So that’s what we are doing. When – 26th – 28th July 2013 Where – Caythorpe Court situated close to Sherwood Forest in Lincolnshire. Price – £119 per person. This price [...]
Check out the documentary on Dider, a small boy with extensive CMN. It features a Caring Matters Now Family Day and many of our CMN kids as well as Dr Kinsler and Mr Bulstrode from Great Ormond Street Hospital.
A word from Luke: “Carrying the Olympic torch was amazing, fun and exciting. I cant believe I got nominated never mind being picked. Mum always says I am an inspiration but I have never believed it. I know I have CMN and 12 years of operations is not nice and I wish I never had [...]
As a result of Jodi coming into the exciting post of Chief Executive for Caring Matters Now Support Group, she is now unable to continue being Chair of Trustees, which is the position Jodi has fulfilled since the support group was established. As I’m sure you are aware, the Chair of Trustees has the responsibility [...]
As you are probably already aware, Jodi Unsworth is the original founder of Caring Matters Now back in 1996. Jodi, who was only 15 at the time and her parent’s took on the role of supporting other families affected by CMN. Since then the support group has developed immensely and today has over 350 families [...]
As Caring Matters Now continues to grow from strength to strength, it is vital that we have a strong team of trustees who are dedicated to developing the charity, enabling our members to receive the best possible support. It gives me great pleasure to introduce our most recent trustee to join the team, Andy Selwood. [...]
For the past number of months, the CMN trustees have been keen to increase the support for our teenage members. All our members are very important to us and we are very aware that teenage years can be difficult, so it gives me great pleasure to introduce our new teenage support contact, Katie Arends. Katie [...]
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