Jodi is a charity fundraising manager for an aid-relief organisation called Blythswood Care. Jodi is also the founder and chair of trustees for Caring Matters Now. Jodi has CMN and was asked to support other people who are affected by CMN by Great Ormond Street Hospital in 1996. Caring Matters Now Support Group was formed in 1998, with the help of her family and friends. The charity has grown from strength to strength over the years and Jodi sees it as a real blessing and privilege to be a part of the organisation. Jodi has met some amazing people who are involved in the support group and she says it is with thanks to her family, friends, CMN trustees, CMN support contacts and Great Ormond Street Hospital that the support group is where it is at today.
Jessica has an MBA from INSEAD and has held various financial management positions at Pepsico, Ford Motor Company and Kimberly-Clark. Jessica joined Caring Matters Now as a Trustee overseeing Finance and Funding in 2007 after her youngest daughter, Pascale, was born with a giant bathing trunk naevi. Jessica and her husband are Canadians currently residing in Kent with their two children.
Lucy has been involved with Caring Matters Now since the birth of her daughter Fay in 2005. Fay was born with a large bathing trunk CMN. Initially Lucy was supporting the charity through fundraising and raising awareness in the local media, but since then she have taken on the responsibility of trustee and is contracted as the Charity Development Officer. Lucy’s background is travel and marketing and so she has been heavily involved in the re-branding of the charity, redesign and production of all of the CMN literature. Lucy now oversees the charity on a day to day basis working closely with Jodi and the other trustees.
Stephen became a part of Caring Matters Now in 2006 as one of the first trustees, following the birth of our daughter Scarlett who has the syndrome. Stephen is a Senior Commercial Director for an American IT/Telecommunications company based in central London and is keen to support the opportunities for raising funds to support Dr Kinsler in her work at Great Ormond Street Hospital. Stephen and his wife Lucy have actively led fundraising activities and sponsored events over the past 5 years helping to get the charity fully established in its early days. Most recently Stephen participated in the Mountt Kilimanjaro Trek along with his brother and friends from Caring Matters Now in October 2011.
Lucy Clarke is married to Stephen Clarke and they have three children. Isabella, Jonty and Scarlett. Scarlett has CMN and due to the lack of knowledge and support Lucy had during Scarlett’s first year of life she didn’t want other people to suffer in the way she did, so therefore and become trustee of the Caring Matters Now. Lucy and Steve live in Evesham Worcestershire and Lucy runs her own pre-school which she loves.
Andy is the most recently appointed CMN trustee as a result to his involvement with the charity through my nephews daughter Lois who has CMN. Andy undertook the amazing challenge of climbing Mount Kilimanjaro for CMN. Andy’s responsibility as a trustee is to arrange further charity challenges on behalf of CMN which will ultimately enhance the profile and raise much needed funds to enable the continued research and support for the charity. Andy currently holds a senior management position within a manufacturing environment and can offer organisational structure and project management techniques to ensure that the charity’s future planned challenges run as smoothly and efficiently as possible, therefore maximising fundraising potential.